Showing posts with label narrative medicine. Show all posts
Showing posts with label narrative medicine. Show all posts

Tuesday, February 10, 2026

Beyond “How Can I Help?”: I Don’t Just Want to Watch the Future of Care—I Want to Help Build It

 

Beyond “How Can I Help?”: I Don’t Just Want to Watch the Future of Care—I Want to Help Build It

Tom Garz, Author - Writing to Help Myself and Others, #OPEN_TO_WORK
Writing to Help Myself and Others - Firebird Book Award Winner.

I’ve been watching the TV series New Amsterdam —especially Max Goodwin and that relentless question: “How can I help?”

A lot of people love Max because he’s inspiring. I relate to him for a different reason: he represents a part of many of us that wants to matter—to help—to make the world a little less harsh for people who are suffering.

I relate to Max… even though I could never be him for various reasons. I’m not a hospital medical director. I’m not running through hallways fixing departments. I’m not going to “hero my way” through broken systems with speeches and authority. I'm a 78 year old retired Engineer/Patent Searcher that has been around illnesses all my life.

But I do feel something real when I watch that show:

I want to be part of something like that—something that helps people in the real world. Not just as a viewer. Not just as a writer. Not just as someone with ideas. I want to be part of the change.

The gap that keeps pulling me back

What the show captures (even with Hollywood shortcuts) is the truth that so many patients live with:

Most of the struggle happens between doctor visits.

People with chronic pain, chronic illness, disability, long-term stress, or limited healthcare access don’t just need a diagnosis—they need a way to live day to day.

  • a Patient Listener
  • what to track
  • what patterns might matter
  • how to prepare for short appointments
  • how to advocate without getting dismissed
  • how to make sense of symptoms at 2 AM (Super Symptom Checker)
  • how to stay emotionally steady while the body is doing something scary

This is the “care gap” that I can’t stop thinking about and that I and many others live with in our current healthcare system.

Why the biopsychosocial model feels like the missing operating system

For chronic conditions, biology is only part of the picture.

Pain and symptoms are shaped by the nervous system, stress load, sleep, environment, relationships, meaning, fear, isolation, work pressures, resources, and the body’s learned patterns over time.

That’s why I’m deeply drawn to the biopsychosocial approach—not as theory, but as a practical way to help real people stop feeling lost.

GenAI as a “safe workaround” (not a replacement)

Here’s where my work has been heading:

I’ve written about how tools like ChatGPT can serve as a 24/7 support layer—not as a doctor, and not as a substitute for care, but as something that helps people:

  • organize their story
  • track symptoms and triggers
  • create a one-page brief for appointments
  • translate confusing information into plain language
  • build health literacy
  • reduce panic and “doom scrolling”
  • and decide when something is urgent vs watch-and-track

For people with limited access to healthcare, that “between visits” support can be the difference between coping and collapsing.

I'm working on a book about how using the BioPsychoSocial Model patients/people can help themselves manage their own chronic pain/conditions 24/7 and only go to the doctor as needed or wanted. A follow-up book will be something like How to Use ChatGPT to Manage Chronic Pain/Conditions using the BioPsychoSocial Model. Stay tuned for these.

But I don’t want to only write about this

I’ll keep writing practical “how-to” books—because that’s one way I know how to help and scale support.

Here's my book series so far - https://www.amazon.com/dp/B0FXHL6712

But what I really want to say in this article is bigger than my books:

I want to connect with people building the future of care—especially for chronic conditions and underserved communities.

If you’re doing any of the following, I’d love to meet you:

  • creating patient-facing AI tools that are safe, humble, and useful
  • working in chronic care navigation, care management, or health coaching
  • building systems that honor the whole person (not just symptoms)
  • exploring narrative medicine, patient storytelling, and “the life context”
  • working in safety-net settings where the need is constant and resources are limited
  • producing, writing, or consulting for health stories that want to get the future right

My ask (and my offer)

I’m not posting this to “promote.” I’m posting it because I want to find like-minded people.

I want to learn what you’re building. I want to contribute where I can—ideas, patient-advocacy frameworks, biopsychosocial models, practical templates, prompts, structured logs, and the “patient brief” tools that help real clinicians and real patients communicate better.

And if there’s a “New Amsterdam: Tomorrow” future being imagined anywhere—inside healthcare, startups, nonprofits, public health, or media— I’d like to be part of that dream, not just write about it.

So I’ll ask it the Max way: How can I help? And maybe also: Who else is already trying? Let’s connect.

(Note: I’m not a healthcare professional. My work is educational/supportive and focused on helping people organize, reflect, track, and communicate—never replacing medical care.)

#NewAmsterdam #Biopsychosocial #ChronicPain #ChronicIllness #PatientAdvocacy 

#HealthEquity #AIinHealthcare #DigitalHealth #NarrativeMedicine #FutureOfCare

@DavidSchulner @Eric D. Manheimer @NBC @Universal Television


Friday, June 27, 2025

🌐 Patients Are Using GenAI for Health—But Who’s Teaching Them How?

Generative AI tools like ChatGPT are rapidly changing how we access health information. Millions of people—especially younger adults—are turning to AI not just for curiosity, but for help managing real-life health concerns. From understanding symptoms to finding emotional support, GenAI is now a quiet companion for patients navigating the gaps between doctor visits.



But as this technology evolves, we must ask:

Who's guiding patients on how to use it wisely, safely, and effectively?

Even more importantly:

How can doctors teach patients how to use GenAI… if they aren’t using it themselves to manage their own health or stress?

📊 The Rise of Patient-Led GenAI Use

Recent data shows:

  • 23% of U.S. adults had used ChatGPT as of early 2024.
  • 1 in 5 users accessed GenAI for health and wellness-related questions.
  • Usage is skewed toward younger adults (43% of 18–29-year-olds have tried ChatGPT) while older adults lag far behind (only 6% of adults over 65).

And yet, across all age groups, people are using GenAI to:

  • Look up symptoms
  • Make sense of confusing diagnoses
  • Seek emotional support
  • Understand medications
  • Ask sensitive questions they might hesitate to bring up with a doctor

They’re doing it with no formal training, often relying on trial and error, social media tips, or guesswork.


⚠️ The Silent Risk: Guidance Isn’t Catching Up

While GenAI adoption is accelerating, healthcare education is lagging behind. Patients are interacting with tools like ChatGPT for deeply personal, often life-impacting reasons—but without a roadmap.

The risks are real:

  • AI can hallucinate or provide medically inaccurate answers
  • Patients may over-trust or misinterpret suggestions
  • Vulnerable populations with lower digital or health literacy may be left behind

Yet research shows: 

🟢 Patients want professional guidance.  

🟢 They trust AI more when it’s recommended by a provider.  

🟢 They’re ready to learn—if someone will teach them.


🩺 Doctors Are Learning GenAI—But Not to Teach Patients (Yet)

To be fair, clinicians are under their own pressure. Medical schools, hospitals, and health systems are starting to offer AI training—for note-taking, triage, diagnostic aid, and research. Some even have AI literacy modules and GenAI-focused continuing education.

But very few:

  • Use GenAI for their own health or stress management
  • Receive training on how to teach patients to use ChatGPT or similar tools
  • Feel comfortable prescribing AI as a self-care companion between visits

Until that changes, a major opportunity remains untapped.


📘 A Book to Bridge the Gap

That’s why I created: 👉 How to Build Your Personalized Holistic Digital Health Companion

This is the first how-to book designed to help people—especially those with chronic conditions or limited access to care—learn how to use ChatGPT as a 24/7 health and life companion.

In plain language, this book teaches readers how to:

  • Track and reflect on symptoms and emotional patterns
  • Use structured prompts to support health goals
  • Ask better questions before seeing a doctor
  • Explore their concerns in a non-judgmental space
  • Navigate stress, overwhelm, and daily challenges holistically

It’s also a tool for healthcare professionals who want to support patients without having to reinvent the wheel.


🔮 What the Future Could Look Like

Imagine this:

  • A patient with chronic pain uses ChatGPT to log symptoms, ask questions, and build a summary for their next doctor visit.
  • Their doctor, familiar with the tool, reviews the chat, fills in the gaps, and recommends reliable follow-up prompts.
  • The patient leaves the office feeling empowered, understood, and with a 24/7 digital companion that continues the care journey.

That future isn’t far away. But it requires action now—from both sides.


🤝 Let's Co-Create the Future

If you’re a clinician, educator, digital health innovator, or just someone who cares about empowering people with better tools, here’s what we need:

✅ More GenAI literacy training—for both patients and professionals

✅ Bridging personal and professional use—so doctors can teach from experience

✅ Human-in-the-loop models—AI assists, but people lead

✅ Equity and safety at the core of every GenAI deployment

This moment is our chance to reimagine care—not as a series of disconnected appointments, but as an ongoing, supported experience where humans and technology work together for well-being.


🔗 How to Build Your Personalized Holistic Digital Health Companion 📘 https://www.amazon.com/dp/B0FC3VTB9C

Let’s build the future of health—together.


Thanks to Generative AI, Google Bard/Gemini and ChatGPT, for help preparing this article.

If you like my work, please check out my Author Page.  Thanks!

Disclaimer - For informational purposes only.  This article is not a substitute for professional medical advice.  Always consult a qualified healthcare provider.  Additional Disclaimers here.

Tuesday, May 27, 2025

Narrative Medicine in the Age of AI: How Generative AI Can Be Your 24/7 Patient Listener

 In modern medicine, one of the most powerful diagnostic tools isn’t found in a lab—it’s the patient’s story. This is the foundation of narrative medicine, a field that recognizes the act of listening to a patient's narrative as essential to healing.


But let’s be honest: most doctors don’t have time to listen deeply. Primary care visits average just 15 minutes. Specialists often focus on one body system. And too many patients leave appointments feeling unheard, misunderstood, or fragmented.

So what if technology could help bridge that gap?

The Promise of Narrative Medicine

Narrative medicine emphasizes empathy, reflection, and connection. When patients are encouraged to tell their full story—not just a list of symptoms, but the context, emotions, beliefs, and life circumstances that surround those symptoms—clinicians gain critical insight. They see the whole person, not just a diagnosis.

But truly practicing narrative medicine requires time, presence, and deep listening—resources that are stretched thin in today’s healthcare system.

Enter Generative AI: The 24/7 Patient Listener

Generative AI, like ChatGPT, Claude, or Gemini, is emerging as a surprising ally. These tools can serve as Patient Listeners—a place where someone can speak freely, think aloud, organize their thoughts, and build a narrative that reflects their inner world and physical reality.

Here’s how it works:

  • You talk. It listens. Whether by typing, voice-to-text, or structured journaling, AI can absorb your full story without interruption or judgment.

  • It helps you sort yourself out. Through reflection, questions, summaries, or gentle reframing, AI can clarify patterns, spotlight emotional triggers, and connect dots between sleep, stress, pain, behavior, and belief.

  • It prepares you for your doctor visit. Once your story is organized, AI can help you summarize it into a brief health history, symptom timeline, or list of priority questions—giving your doctor exactly what they need, efficiently.

  • It never rushes you. Unlike overbooked clinics, AI has time. And that alone can be healing.

A Use Case: From Chaos to Clarity

Imagine someone struggling with fatigue, brain fog, and chronic digestive issues. They feel overwhelmed and unheard. Using an AI assistant, they begin to unpack their story:

“I’ve been exhausted for months. Mornings are the worst. I’ve tried cutting out gluten, but my stomach still acts up. I’m also under a lot of stress—my mom’s been sick, and I work two jobs.”

The AI reflects back:

“It sounds like your fatigue and gut issues have been persistent and may be worsened by emotional stress. Would it help to create a timeline or note when these symptoms feel better or worse?”

Over time, the user builds a holistic snapshot of their health. When it’s time to see the doctor, they’re ready with a clear summary that honors both science and story.

A New Partnership

This isn’t about replacing doctors—it’s about amplifying what’s already possible when medicine meets meaning.

Generative AI can be:

  • A mirror for self-reflection

  • A translator for complex experiences

  • A bridge between overwhelmed patients and time-pressed providers

Doctors still diagnose, treat, and guide care. But patients come to those visits more prepared, more empowered, and more understood.

Moving Forward

If we truly want person-centered care, we need person-centered tools. Narrative medicine taught us the value of the story. Generative AI can help us tell it—clearly, fully, and at our own pace.

It’s time to rethink what "patient communication" means in the digital age. The doctor may be busy. But the Patient Listener is always ready.


Let’s build a future where AI and empathy work hand in hand. If you’ve used ChatGPT or another AI to reflect on your health story or prep for a doctor visit, I’d love to hear your experience in the comments.

#NarrativeMedicine #GenerativeAI #PatientEmpowerment #HealthTech #AIForGood #DigitalHealth #DoctorPatientCommunication

 

Thanks to Generative AI, Google Bard/Gemini and ChatGPT, for help preparing this article.

If you like my work, please check out my Author Page.  Thanks!

Disclaimer - For informational purposes only.  This article is not a substitute for professional medical advice.  Always consult a qualified healthcare provider.  Additional Disclaimers here.